I was woundering if you could send me some information about Porfyria. This because this I’’nes is a family desees and we, as family, are looking for as much information as possible about it. This because the Dutch medical people gave us information that the just printed so… we believe that they don’t know a lot of it.
If you can help me, please send information, url’s and anything that could be possible relevant to my e-mail address (firstname.lastname@example.org).
I hope you can help us ons ome information,
With all respect and hoping to hear very soon from you,